1 Comment

1. Cindie Gee on April 5, 2026 at 2:10 pm

   Wow, that brought back so many memories. Jeff, it can be hell when you are in that caretaker position, I have done it for so many years. If you ever think you need anything medical like the bedrail, PLEASE call me. I have medical equipment for almost anything. I keep saying I am going to put it all up for sale to get rid of it but I will give it to you if it will help.
   It really sucks when you have a nurse like that, I have had to rip into a few.
   It also sucks when you have to wait so long for a Dr to see you. I was referred to a Dr last month and not one can see me until mid July. It is insane. Thank you for taking such wonderful care of my beautiful neice.
   Tiffany, my heart is with you. Please always remember it is nothing to be ashamed of or embarassed by. It is not something you can control and nobody who matters will ever think less of you for what your illness does. Joe apologized to me many times a day and I always told him he had nothing to be sorry for. It was my honor to care for him. I have to have surgery on the 15th l cant remember what it is called but instead of just burning the nerves in the back with RFA they are going in to remove the nerves around my spine that cause so much pain. That option was never given to Joe in over 15 years. They say it can solve the pain for years instead of months. I hope he is right, since injections aren’t working. It is hard to not know what to do. One thing I highly recommend is if any of the providers you see have My Chart, use it. Every time Joe went back in the hospital I read every test done and the results and if I didnt understand it I would ask Chatgpt about it and it explained it to me and even told me what to ask the Dr. I am so thankful I had that. I found out from reading his scans that his hip was so bad it was nearly frozen in place. He would just say things like “Wow, did you hear my hip” but never complained about it. I know I would have been lost without that tool. I read every note any Dr or nurse entered as well, many pissed me off they used the same wording exactly every time even if it didnt quite happen that way. I would just note it.
   If you need ANYTHING I can help with, please let me know. I know you both have already had to deal with so many trips to the hospital already but I have a lot of practice with that as well and am here if you need to just talk about it or have questions how to handle a situation with a crappy nurse or anything. It is hard when the one you love is unable and you have to make decisions while you are so scared and worried about them you can’t think of anything but what they are going through.
   If you ever get to the uncontrollable peeing, I have lots os washable bed pads. It is a lot easier to wash a pad then all the sheets, lol. I love you.